I am a wife and mom of two. Family is my priority in life other than my health.
In 2008, I started to get “sick”. As weeks progressed, I became sicker ~ some of the symptoms included extreme shortness of breath, inability to do daily functions such as cooking, sweeping to basic hygiene.
After being hospitalized due to low oxygen saturation, I was diagnosed with hypersensitivity pneumonitis, discontinued work, prescribed prednisone and sent home with oxygen. I was able to discontinue the oxygen after 5 weeks.
I seemed to go into remission after many months & the prednisone was slowly tapered off. I worked for a short time until I had a relapse in 2013. Since that time I have been unable to return to work because of my poor health.
To date, my tests have included : endless blood tests, x-rays, catscans, pulmonary function tests; allergy testing; a spinal tap; a colonoscopy; 2 heart ultrasounds; 2 bronchoscopies; and finally a video assisted thoracic surgery (VATS).
I have been on multiple medications but my lungs have only responded to prednisone to control the inflammation. I have been on and off of prednisone since becoming sick, but have been on it now for the longest duration being one year.
My current diagnosis after these tests is nonspecfic interstitial pneumonitis which is a chronic illness. I have also been diagnosed with anxiety and depression.
My doctors have included 2 GP’s, 2 respirologists, a rheumatologist and a psychologist.
My medical team have been absolutely wonderful.